Anyone take Tepezza?

Dec 24, 2025 - 8:27 AM

https://megagrass.com/community/question-and-answer/forums/4133/topics/3057808 COPY
  • This is a question about hearing loss caused by the drug Tepezza.

    I have Thyroid Eye Disease which causes vision problems, and worse makes certain movement-related conditions I have worse. I can function okay at an easy part-time job but I'm about 60% disabled and it's getting worse. A new drug for T.E.D. is available called Tepezza. It's given in 8 infusions. Only 8 are needed.

    The scary thing for me as an amateur musician and music lover is that it can cause what they optimistically call hearing problems. This includes stuffed ears from eustachian tube dysfunction (reversible after treatment concludes), but also partial or even complete hearing loss (usually at least partially reversible but sometimes permanent). About 15% of the participants in the trial had hearing problems and it seems like most were not the scary hearing loss type.

    The thing is, I believe Tepezza could restore me to full employment, and it would be a miracle drug if it works for T.E.D. and creates only minor side-effects.

    Between a rock and a hard place. At least I can sell my expensive audio equipment after I get the hearing aids.

    0
  • I can’t see how you are between a rock and a hard place. Sorry. Time to get real though, you’re sick and you have the chance to get better.

    0
  • I used Tepezza last year and had some unexpected hearing issues that I didn’t connect to the drug right away. Turns out I'm not alone—some people have had similar problems. If you're looking into this, check out https://natlawreview.com/article/tepezza-lawsuits-key-facts-patients-hearing-damage/ for more info on the lawsuits and what others have gone through. It helped me understand the risks a bit better.

    0